Miller Children's Hospital is bustling with activity and noise. It's a little overwhelming at first, but we're getting used to it. Caitlyn has been doing more aggressive respiratory therapy with new drugs (inhaled steroids, like I mentioned before). It's hard to know if the therapy has resulted in any improvement yet. I'm not sure if there will be a chest x-ray today or tomorrow. It sounds kind of likely that they will end up doing the bronchoscopy, but you never know.
Caitlyn had gotten really tired of being in the hospital and wanted to go home. However, today, we found that there is a game and activity room here, and now she's happily painting and playing. I'm not so sure she'll want to leave, now. :)
I've spoken to a ton of doctors (mostly residents as this is a teaching hospital) and I am starting to see that Caitlyn's pneumonia/atelectasis (collapse) was a lot more severe than I had initially thought. People keep saying how shocked they are to see how well she is doing based on the x-rays. God has really protected her and minimized her pain and discomfort. We feel so blessed that it's really not been that bad of an experience for us.
Thanks again, for all of the support.
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3 comments:
Hi Caitlyn,
I hope you are feeling better. Glad that you are having fun in the game room. If you are still in the hospital this weekend, maybe I can come and visit you.
I'm still saying prayers for you to come home and get better soon. Hopefully we can have a play date soon!
Love, Kristen
how weird that you're at a children's hospital. i work at the #4 children's hospital in the nation. are you in the icu? it's weird to know exactly what environment you're in and how you as parents must feel, ally. i would be the person showing you around, getting you what you need, etc. it just makes me pray that caitlyn will get better quicker and that you all can go home soon!
love you and praying for you all,
bex
hey caitlyn
i hope that the new treatment will be more effective. we are all praying for you. hang in there. don't get too good at the video games. who else am i gonna play with?
love
paul kim
aka ninja warrior
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